Up to 1.5 million disabled people could be missing out on social care support

A poll of 1,504 working-age disabled adults found that 28% have never accessed social care or other support despite potentially being eligible. Healthwatch England are calling for a fully funded, long-term plan to reform social care.

Up to 1.5 million disabled people could be missing out on social care support 

According to estimates by Healthwatch England, up to 1.5 million working-age disabled people in England could need social care support but are not accessing it. This means they are likely to be missing out on help with daily activities such as washing, cleaning, socialising, and going to the shops. 

Ten years since the Care Act 2014 came into force, a new poll revealed that out of 1,504 working-age disabled adults in England, more than one in four, 28%, could be eligible for support under Care Act criteria but have never had a social care needs assessment. 

Across the country, this would translate to around 1.5 million people. 

Healthwatch England, which commissioned the poll, identified people who may have unmet social care needs based on their responses—people who said they’re eligible for social care under the Care Act but who have never received social care due to multiple factors: 

  • They didn’t think they could get any support (65%); 
  • They didn’t know where to go for support (34%); 
  • They were unable to afford to pay for care or contributions (26%); 
  • They found it too difficult to get support from councils or the NHS (14%); 
  • Their local service closed; (2%). 

The poll also found that when people receive social care, they generally report positive experiences. 

Out of 20% of respondents who said they currently receive social care, over three quarters, 78%, agreed that the care they receive helps them live the life they want, compared to only nine per cent who disagreed with the statement. 

Two-thirds (62%) of the respondents who receive social care said it helps them stay healthy, while over half, 51%, said it helps them do the activities they enjoy. 

Just under half, 47%, said that their care enables them to keep themselves and their home clean, and the same number said it supports them to eat and drink properly. Just over one in five, 22%, of people said that their care supports them in working, studying, or volunteering.  

Under the Care Act, people may be eligible for social care support if their needs arise from a physical impairment or illness that negatively affects their ability to perform tasks quickly, independently, and safely, while also affecting their wellbeing. 

However, the extent to which eligibility might apply to more disabled people will remain unknown until people can easily interact with social care services or access assessments. 

Louise Ansari, Chief Executive at Healthwatch England, said: 

"Social care can transform people's lives. This new research highlights this and shows how people can live more independently and on their own terms with the right care.

“But they need to get it in the first place.

"We need to ensure that more support is available to disabled people and make accessing it easier.  This will not only help more people with their immediate needs, it will also reduce pressure on the NHS and assist more individuals into work."   

We’re calling for dedicated funding for local authorities to raise public awareness of social care, including proactive outreach to people who may be eligible for support, as part of broader social care reform plans. 

As part of the reform plan, Healthwatch England set out the following recommendations:   

  • The Government should fund local authorities to raise public awareness of social care and find potentially eligible individuals through proactive outreach to disabled people.
  • The Government should also dedicate funding to boost capacity and support councils in addressing existing care assessments and care package backlogs.
  • There needs to be greater investment to ensure all disabled people accessing social care assessments are offered a Care Act advocate who can help them understand the assessment process and their rights. 

You can read the full report from Healthwatch England here: Healthwatch England: Missing millions: Exploring unmet social care need for disabled adults